RESOURCES

One of the many challenges new Down syndrome families face is knowing what services and programs are available for the care and well-being of their child. As an organization, one of our goals is to provide helpful and accurate information to assist and support those with Down syndrome and their families. Below is a helpful directory of resources of some of the programs and services available. This directory is not an endorsement and should be used for informational purposes only.

RESOURCES

One of the many challenges new Down syndrome families face is knowing what services and programs are available for the care and well-being of their child. As an organization, one of our goals is to provide helpful and accurate information to assist and support those with Down syndrome and their families. Below is a helpful directory of resources of some of the programs and services available. This directory is not an endorsement and should be used for informational purposes only.

Down Syndrome Fact Sheet

Click here to find facts and information about Down syndrome.

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Just Like You

Candid, heartwarming film featuring kids with Down syndrome sharing their experiences, with the goal of opening hearts and perspectives.

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Preferred Language Guide

Use this language when referring to Down syndrome and people who have Down syndrome.

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National Down Syndrome Society

Leading human rights organization for all individuals with Down syndrome.

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Down Syndrome Diagnosis Network

The mission of DSDN is to connect, support, and provide accurate information for families with a Down syndrome diagnosis. DSDN provides multiple online membership groups and annual retreats for families.

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National Down Syndrome Adoption Network

Specializes in ensuring that every child born with Down syndrome has the opportunity to grow up in a loving family.

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Disability Rights Louisiana

Assists people with disabilities in Louisiana to understand and exercise their rights under the law, ensuring their full and equal participation in society.

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Exceptional Lives: Louisiana

A non-profit organization providing free tools, information, and resources for Louisiana families of children with disabilities or special needs.

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Special Needs Care

Search for local childcare providers who have experience with individuals with special needs.

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PREP: Louisiana Special Education Parent Guide

PREP provides parents and community members with information about education rights through public workshops, training, consultation clinics, and guides, as well as basic information about education laws, policies, and procedures.

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Louisiana Workforce Commission

Rehabilitation services to assist persons with disabilities to obtain, maintain or advance in competitive employment and achieve independence in their communities.

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Ds-Connect: The Down Syndrome Registry

Connect to researchers and health care providers, express interest in participating in certain clinical studies on Down syndrome, and take confidential health-related surveys aimed at better understanding the health of people with Down syndrome across their lifespans.

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Adult Down Syndrome Center Resource Library

Comprehensive resource library developed by Advocate Medical Group Adult Down Syndrome Center for people with Down syndrome, family members/caregivers, and health care professionals.

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